Improving survival rates for adolescents and young adults with cancer.
Adolescents and young adults (AYA) with cancer have often been described as a medically underserved population, falling through the gap between pediatric and adult oncology. As AYAs transition from childhood or adulthood the normal concerns they may have – development of body image, dating, separating from parents, career and education decisions – are compounded when they are faced with cancer. AYA cancer patients may face issues such as infertility, loss of employment/breaks in education due to treatment, increased dependence on parents, and other health concerns that may be exceptionally difficult for this group to cope with.
Source: Zebrack B, Hamilton R, Smith A. Psychosocial Outcomes and Service Use Among Young Adults With Cancer. Semin Oncol. 2009; 36:468-477.
Psychosocial care for adolescent and young adult hematopoietic cell transplant patients.
J Psychosoc Oncol. 2011 Jul-Aug;29(4):394-414
Authors: Cooke L, Chung C, Grant M
Abstract
Psychological issues following hematopoietic cell transplantation (HCT) are unfortunately common. Literature specific to the transplant experience for the needs of adolescents and young adults (AYA) is lacking. The purpose of this article is to (1) describe the allogeneic transplant experience for AYA...
To foster healing among adolescents and young adults with cancer: What helps? What hurts?
Support Care Cancer. 2009 Aug 20;
Authors: Zebrack B, Chesler MA, Kaplan S
PURPOSE: The physical and emotional well-being of adolescents and young adults with cancer (AYA) rests on the ability of all concerned to promote helpful forms of care and reduce hurtful forms. The purpose of this study was to identify aspects of behavior that may promote or inhibit healthy psychosocial adjustment for this age-defined...
The impact of mental health and traumatic life experiences on antiretroviral treatment outcomes for people living with HIV/AIDS.
J Antimicrob Chemother. 2009 Apr;63(4):636-40
Authors: Pence BW
Potent antiretroviral therapy (ART) has transformed HIV from a death sentence to a chronic illness. Accordingly, the goal of HIV care has shifted from delaying death to achieving optimal health outcomes through...
Coping strategies and patterns of alcohol and drug use among HIV-infected patients in the United States Southeast.
AIDS Patient Care STDS. 2008 Nov;22(11):869-77
Authors: Pence BW, Thielman NM, Whetten K, Ostermann J, Kumar V, Mugavero MJ
Alcohol and drug use are common among HIV-infected patients and are important determinants of secondary transmission risk and medication adherence. As part of the...
Current issues in adolescent and young adult cancer survivorship.
Cancer Control. 2008 Jan;15(1):55-62
Authors: Soliman H, Agresta SV
Overall, the survival rate for cancer patients has continued to improve over the past several decades. However, those aged 15 to 29 years have not experienced the same improvements in survival. This review explores some of the challenges faced by adolescent and young adult (AYA) cancer patients and their survivorship needs.
PMID: 18094661 [PubMed -...
Psychosocial predictors of sexual initiation and high-risk sexual behaviors in early adolescence.
Child Adolesc Psychiatry Ment Health. 2007;1(1):14
Authors: Caminis A, Henrich C, Ruchkin V, Schwab-Stone M, Martin A
This longitudinal study examined psychosocial factors associated with risky sexual behavior in early adolescence.
PMID: 18034904 [PubMed]
The influence of psychosocial characteristics and race/ethnicity on the use, duration, and success of antiretroviral therapy.
J Acquir Immune Defic Syndr. 2008 Feb 1;47(2):194-201
Authors: Pence BW, Ostermann J, Kumar V, Whetten K, Thielman N, Mugavero MJ
Expanded access to antiretroviral therapy (ART) has produced dramatic reductions in HIV-associated morbidity and mortality. Disparities in access to and benefit from ART have been observed by race, gender, and mental health status, however....
Adolescent and young adult (AYA) oncology: the first A.
Pediatr Hematol Oncol. 2007 Jul-Aug;24(5):325-36
Authors: Bleyer A
Whereas adolescents with cancer as a group used to have a better prognosis than children with malignant disease, trends suggest that the overall survival of 15- to 19-year-olds is now worse than in younger patients. Also, the incidence of cancer is higher in 15- to 19-year age span than during the first 15 years of life. In 2006, the U.S. National Cancer Institute (NCI) and the...
Tomando Control: a culturally appropriate diabetes education program for Spanish-speaking individuals with type 2 diabetes mellitus--evaluation of a pilot project.
Diabetes Educ. 2006 Sep-Oct;32(5):751-60
Authors: Mauldon M, Melkus GD, Cagganello M
The purpose of this study was to pilot test the feasibility, acceptability, and efficacy of a culturally appropriate and culturally relevant Spanish-language cognitive-behavioral diabetes self-care educational intervention for Hispanic Americans with...
The adolescent/young adult experience.
J Pediatr Oncol Nurs. 2004 May-Jun;21(3):145-9
Authors: Haase JE, Phillips CR
Adolescents and young adults with cancer (AYA) have strikingly poorer outcomes when compared to younger or older patients. Contributing reasons include low rates of enrollment in clinical trials and the "invisibility" of the AYA perspectives in research reports. We recommend a shift in research perspectives away from function-based studies that focus on morbidity and mortality...
Psychosocial aspects of women's lives: work, family, and life cycle issues.
Psychiatr Clin North Am. 2003 Sep;26(3):741-57, viii
Authors: Shrier DK
Over the past century and continuing to evolve into the twenty-first century, there have been dramatic changes in work and personal/family lives within the United States. These changes, though strongly affecting men and children, have impacted most dramatically on women's lives, particularly white, middle-class women. Psychiatrists and other mental...
Quality-of-life measurements: origin and pathogenesis.
Yale J Biol Med. 2002 Mar-Apr;75(2):79-93
Authors: Prutkin JM, Feinstein AR
Despite extensive growth in recent years, the field of "quality-of-life" appraisal still evokes debate about basic perception of the concept and is accompanied by a plethora of indexes for measurement. One prime reason for the problems is that the measurements have been...
from patients, caregivers and medical professionals dealing with this disease and many other diseases
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